CBM Italia a Uganda: Labarin Dot, Wani ɗan Shekara 9 da Retinoblastoma ya shafa, Ciwon Ciwon Ciwon Jiki da ke Hatsari Rayuwar Yara a Kudancin Duniya

retinoblastoma m ciwon ido na ido yawanci samu a marasa lafiya na yara.

Idan ba a gano shi ba, shi yana haifar da asarar hangen nesa kuma, a lokuta masu tsanani. mutuwa.

"Wannan yarinyar tana da matsala da idanunta," in ji labarin dot, Yarinya yar shekara 9 da aka haifa a wani kauye a Sudan ta Kudu kuma retinoblastoma ya shafa, wani mummunan ciwon ƙwayar ido wanda ke shafar kowace shekara 9,000 yara duniya (source: American Academy of Ophthalmology). Uwar ce ta lura cewa wani abu ba daidai ba ne; Idanuwan 'yarta sun kumbura sosai, kuma ta gaya wa mijinta David, wanda a halin yanzu yake Juba, babban birnin kasar, yana halartar shekara ta biyu na karatun jami'ar aikin gona.

“ Dattawan yankinmu sun ce ba da gaske ba ne. Sun gwada wasu magungunan ganye, amma hakan bai inganta ba. A lokacin, na ce su kawo ta nan garin da akwai cibiyar kula da ido da za ta iya taimaka mana.” David ya gaya wa CBM Italiya - Ƙungiya ta kasa da kasa da ke da alhakin kiwon lafiya, ilimi, aiki, da haƙƙin nakasassu a duk duniya da kuma a Italiya - wanda ke aiki ta hanyar abokan tarayya a kasashe masu tasowa, irin su BEC - Buluk Eye Center a Sudan ta Kudu da kuma Ruharo Mission Hospital a Uganda.

Bayan tafiyar dare. Dot da David a ƙarshe sun sake tare: “Da isowarmu, nan da nan na kai ta BEC, cibiyar ido daya tilo a nan. Sun bincika ta, kuma binciken shine: ciwon ido. Likitocin sun ce min tana bukatar a yi mata tiyata a Ruharo, sai muka tashi." Ruharo Mission Hospital, wanda ke Mbarara a yammacin Uganda, wuri ne da ake magana game da maganin cutar kansar ido a wannan yanki na Afirka.

David da Dot sun hau a Tafiya kilomita 900 daga Juba zuwa Mbara: “Nan da nan likitoci sun yi maraba da Dot da suka duba ta, suka yi mata aiki, kuma suka yi mata maganin chemotherapy. Mun kasance a can daga Mayu zuwa Oktoba na bara, duka biyu sun bi kuma sun taimaka kowace rana don fuskantar wannan gwagwarmayar rayuwa. Kuma, ƙaramara, ta ci nasara a yaƙinta!”

Kamar yadda sau da yawa yakan faru a wadannan yankunan da ke kudu da hamadar Sahara, tun da ba a gane cutar ba kuma a kan lokaci, lokacin da Dot ta isa asibiti. ciwon ya kasance a wani mataki na ci gaba, wanda ya kai ga rasa idonta: “Samun idon gilashi ba babbar matsala ba ce; za ku iya tsira. Yara har yanzu suna iya yin abubuwa da yawa, har ma da ɗaukar jakar baya da zuwa makaranta. Matsalar kawai ita ce har yanzu tana ƙarama kuma tana buƙatar yanayi mai kyau da aminci. Yanayin da mutane ke sane da waɗannan nakasa; idan na mayar da ita kauye, ina tsammanin za su bar ta a gefe."

Duk da cutar da ta same ta, Dot tana lafiya, kuma Labarin ƙarshenta mai daɗi yana wakiltar bege ga yara da yawa da retinoblastoma ya shafa: “Samun ido ɗaya kawai ba yana nufin ya ƙare ba. Nan gaba ka ganta idan na iya sarrafata to ta zama ‘ya mai ilimi. Zan kai ta makaranta mai kyau; za ta yi karatu, ta yi koyi da ‘ya’yan kabilu daban-daban.”

Labarin Dot yana ɗaya daga cikin da yawa waɗanda CBM Italia ta tattara a Uganda game da muggan ciwace-ciwacen ido ko retinoblastoma. Cutar, a cikinta matakin farko, gabatar da farin reflex a cikin ido (leukocoria) ko tare da karkatar da ido (strabismus); a lokuta mafi tsanani, shi yana haifar da lalacewa da matsanancin kumburi. Sakamakon kurakuran kwayoyin halitta, abubuwan gado, ko waɗanda zasu iya faruwa a farkon shekarun rayuwa (a mafi yawan lokuta a cikin shekaru 3), retinoblastoma na iya tasowa a cikin ido ɗaya ko duka biyu kuma yana shafar sauran gabobin.

Idan ba a yi gaggawar ba, irin wannan nau'in ciwon daji yana da mummunan sakamako: daga hasarar gani zuwa asarar ido, zuwa mutuwa.

A cikin kasashen da Duniya ta Kudu, talauci, rashin rigakafi, rashin kayan aiki na musamman, da likitoci sune abubuwan da ke hana farkon ganewar asali na retinoblastoma, suna taimakawa wajen haifar da mummunar da'irar da ke danganta talauci da nakasa: ya isa a yi tunanin cewa adadin rayuwar yara zuwa cutar shine 65. % a kasashe masu karamin karfi, yayin da ya kai kashi 96 cikin XNUMX a cikin kasashe masu tasowa inda za a iya gano cutar da wuri.

A saboda wannan dalili, daga baya 2006, CBM ya kasance yana gudanar da wani muhimmin shiri na rigakafi da magani na retinoblastoma a asibitin Ruharo Mission, wanda a tsawon lokaci ya kara rayuwar yara, tare da yiwuwar samun cikakkiyar waraka, tare da kiyaye hangen nesa. Godiya ga gabatar da shirye-shiryen hada magunguna (Radiotherapy, Laser therapy, cryotherapy, chemotherapy, fida ido, yin amfani da kayan kwalliya), da ayyukan wayar da kan jama'a a wannan yanki, a yau Ruharo na kula da dimbin marasa lafiya. 15% daga cikinsu sun fito daga: Jamhuriyar Demokradiyyar Kongo, Sudan ta Kudu, Rwanda, Burundi, Tanzania, Kenya, da Somalia.

CBM Italia, musamman, yana tallafawa Asibitin Ofishin Jakadancin Ruharo ta hanyar tabbatarwa kai tsaye ziyara da ganewar asali, aikin tiyata, asibiti, da kuma magani na dogon lokaci ga yara 175 da retinoblastoma ke shafa kowace shekara.

Manufar ita ce maraba da kulawa Sabbin yara 100 duk shekara, yayin da 75 ke ci gaba da maganin da aka fara a shekarun baya. Aikin kuma yana tallafawa iyalai (wanda ke fitowa daga mafi nisa da yankunan karkara) a lokacin zaman asibiti, biyan kuɗi don abinci, kudaden sufuri don ziyara da yawa, shawarwari na shawarwari, da kuma goyon bayan zamantakewar zamantakewa don tabbatar da cewa matasa marasa lafiya sun bi cikakken tsarin kulawa wanda, in ba haka ba, saboda talauci, su za a tilasta watsi.

Ana kuma ba da kulawa ta musamman ga ma'aikatan lafiya na asibitin, an horar da su don ganowa, ganewar asali, dubawa, da kuma kula da lamuran retinoblastoma. Har ila yau, CBM Italia yana gudanar da ayyukan wayar da kan jama'a sosai a cikin al'ummomi don canza tunanin cutar da kuma tabbatar da cewa yara masu matsalar hangen nesa ba a bincika su nan da nan ba amma har al'umma kanta sun yarda da su.

Wanene CBM Italia

CBM Italia wani yanki ne na duniya kungiyar kasa da kasa mai himma ga kiwon lafiya, ilimi, aiki, da haƙƙin nakasassu inda aka fi buƙata, a duniya da Italiya. A cikin shekarar da ta gabata (2022), ta aiwatar da ayyuka 43 a kasashe 11 na Afirka, Asiya, da Latin Amurka, wanda ya kai mutane 976,000; a Italiya, ya aiwatar da ayyuka 15. www.cbmitalia.org

Kamfen na wayar da kan jama’a”Daga Cikin Inuwa, Domin Haqqin Gani Da Gani,” da aka kaddamar a lokacin bikin Ranar Gani ta Duniya, yana da nufin tabbatar da kulawar ido ga kusan mutane miliyan 1 a kowace shekara a cikin ƙasashe na Kudancin Duniya, godiya ga rigakafin, magani, da ayyukan gyarawa don nakasar gani da haɗawa cikin al'umma.

CBM Italia wani bangare ne na CBM – Christian Blind Mission, kungiyar da WHO ta amince da ita saboda jajircewarta na sama da shekaru 110 don samar da kulawar ido mai sauki da inganci. A cikin shekarar da ta gabata, CBM ya aiwatar Ayyuka 391 a cikin kasashe 44 na duniya, sun kai miliyan 8.8 masu cin gajiyar.

Akwai sama Mutane biliyan bilyan 2 duniya tare da matsalolin hangen nesa. Rabin waɗannan, sun ƙare Mutane biliyan bilyan 1, sun fi mayar da hankali ne a kasashe masu tasowa, inda ba su da damar yin ayyukan kula da ido. Amma duk da haka 90% na duk nakasar gani ana iya hana su kuma ana iya magance su. (source: Rahoton Duniya akan hangen nesa, WHO 2019).

Sources

• Rahoton da aka ƙayyade na CBM Italia