CBM Italia muUganda: Nyaya yaDot, ane Makore 9 Okuberekwa Akabatwa neRetinoblastoma, Retinal Tumor Inoisa Hupenyu hweVana Mungozi muGlobal South.

retinoblastoma ane utsinye bundu re retina kazhinji inowanikwa mu varwere vevana.

Kana ikasiiwa isina kuongororwa, it kunotungamirira kukurasikirwa kwekuona uye, mumatambudziko akaoma, rufu.

“Musikana uyu ane dambudziko nemaziso,” inotanga nyaya ya tira, musikana ane makore 9 okukura akaberekerwa mumusha wokumaruwa mu South Sudan uye yakakanganiswa ne retinoblastoma, bundu rakashata retina rinobata gore negore 9,000 vana pasi rose (chibviro: American Academy of Ophthalmology). Amai ndivo vanoona kuti pane chakaipa; ziso romwanasikana wake rakazvimba zvikuru, uye anoudza murume wake David, uyo panguva ino ari muJuba, dzimbahwe, achipinda gore rechipiri rekosi yake yeyunivhesiti yokurima.

“Vakuru vedunhu redu vakati hazvina kunetsa. Vakaedza mishonga yemakwenzi, asi haina kunaka. Panguva iyoyo ndakavaudza kuti vauye naye kuno kudhorobha uko kune nzvimbo yemaziso inogona kutibatsira,” anodaro. David anoudza CBM Italia - sangano repasi rose rakazvipira kuhutano, dzidzo, basa, uye kodzero dzevanhu vakaremara pasi rose uye muItaly - iro rinoshanda kuburikidza nevanodyidzana navo munyika dzichiri kusimukira, dzakadai seBEC - Buluk Eye Center muSouth Sudan uye Ruharo Mission Hospital muUganda.

Mushure mekufamba husiku hwese, Dot naDavid pakupedzisira vari pamwe chete zvakare: “Tangosvika, ndakabva ndamuendesa kuBEC, nzvimbo yemaziso chete pano. Vakamuongorora, uye zvakaonekwa kuti: gomarara reziso. Vanachiremba vakandiudza kuti aifanira kunovhiyiwa kuRuharo, saka takabva tasimuka.” Ruharo Mission Hospital, iri kuMbarara kumadokero kweUganda, inzvimbo inotaridzwa yekurapa gomarara reziso muchikamu chino cheAfrica.

David naDot vanokwira a 900 km rwendo kubva kuJuba kuenda kuMbarara: “Dot akakurumidza kugamuchirwa navanachiremba vakamuongorora, vakamuvhiya, uye vakamurapa. Takanga tiripo kubva muna Chivabvu kusvika muna Gumiguru gore rakapera, tose takatevera uye takabatsira zuva nezuva kutarisana nehondo iyi yakaoma youpenyu. Uye, mudiki wangu, akakunda hondo yake!

Sezvinowanzoitika munzvimbo idzi dziri kumaodzanyemba kweSahara muAfrica, sezvo chirwere ichi chisingazivikanwe uye kurapwa nenguva, apo Dot akasvika kuchipatara, bundu rakanga rave padanho repamusoro, kuchitungamirira kukurasikirwa kweziso rake: “Kuva neziso regirazi hakusi chinetso chikuru; unogona kurarama. Vana vachiri kukwanisa kuita zvinhu zvakawanda, kunyange kutakura bhegi uye kuenda kuchikoro. Dambudziko nderekuti achiri mudiki uye anoda nzvimbo yakanaka uye yakachengeteka. Nzvimbo iyo vanhu vanoziva nezvehurema uhu; dai ndaizomudzosera kumusha zvino, ndinofunga vaizomusiya padivi.”

Pasinei nechirwere chakamurova, Dot ari nani, uye nyaya yake inofadza yekupedzisira inomiririra tariro yevana vazhinji vakabatwa ne retinoblastoma: “Kuva neziso rimwe chete hazvirevi kuti zvapera. Nguva inotevera yaunomuona, kana ndikakwanisa kuzvibata, anenge ari mwana akadzidza. Ndichamuendesa kuchikoro chakanaka; achadzidza, odzidza nevana vemarudzi akasiyana.”

Nyaya yaDot ndeimwe yeakawanda ayo CBM Italia yakaunganidza muUganda nezve akashata ocular tumors kana retinoblastoma. Chirwere chacho, mukati maro danho rekutanga, zvipo zvine chena reflex muziso (leukocoria) kana ne kutsauka kweziso (strabismus); mune zvakanyanya kuoma, it inokonzera deformation uye kunyanya kuzvimba. Inokonzerwa nekukanganisa kwemajini, zvinhu zvenhaka, kana izvo zvinogona kuitika mumakore ekutanga ehupenyu (muzviitiko zvakawanda mukati memakore matatu), retinoblastoma inogona kukura mune rimwe kana maziso maviri uye inokanganisa dzimwe nhengo zvakare.

Kana isina kurapwa nekukurumidza, rudzi urwu rwebundu rune migumisiro yakakomba: kubva pakurasikirwa nekuona kusvika pakurasikirwa kweziso, kusvika pakufa.

Munyika dze Global South, urombo, kushaikwa kwekudzivirira, kusavapo kwezvivakwa zvehunyanzvi, uye vanachiremba zvinhu zvinotadzisa kuongororwa kwekutanga kwe retinoblastoma, zvichibatsira mukupisa denderedzwa rakashata rinobatanidza urombo nekuremara: zvakakwana kufunga kuti chiyero chekupona kwevana kune chirwere 65 % munyika dzine mari yakaderera, nepo ichikwira kusvika ku96% munyika dzine mari yakawanda uko kuongororwa kwekutanga kunokwanisika.

Nokuda kwechikonzero ichi, kubvira 2006, CBM yave ichiita chirongwa chakakosha chekudzivirira nekurapa retinoblastoma paRuharo Mission Hospital, iyo nekufamba kwenguva yakawedzera kupona kwevana, pamwe nekukwanisa kuporeswa zvakakwana, pamwe nekuchengetedza kuona. Nekuda kwekutanga kweakatevedzana marapirwo akabatanidzwa (radiotherapy, laser therapy, cryotherapy, chemotherapy, kuvhiya kubviswa kweziso, kushandiswa kweprostheses), uye mabasa ekusimudzira ruzivo munharaunda, nhasi, Ruharo anotarisira varwere vazhinji vechidiki, 15% vavo vanobva: Democratic Republic of Congo, South Sudan, Rwanda, Burundi, Tanzania, Kenya, neSomalia.

CBM Italia, kunyanya, inotsigira Ruharo Mission Hospital nekuona kushanya nekukasira uye kuongororwa, kupindira kwekuvhiya, kuchipatara, uye kurapwa kwenguva refu kwevana ve175 vanobatwa ne retinoblastoma gore negore.

Chinangwa ndechekugamuchira uye kubata 100 vana vatsva gore negore, nepo 75 vachienderera mberi nekurapa kwakatanga mumakore apfuura. Chirongwa ichi chinotsigirawo mhuri (kubva kunzvimbo dziri kure nekumaruwa) panguva yekugara muchipatara, kubhadhara mari yezvokudya, mari yekufambisa kwekushanyira kwakawanda, mazano ekupa mazano, uye rubatsiro rwepfungwa kuti vaone kuti varwere vechidiki vanotevera zvizere chirongwa chekurapa icho, zvisinei, nekuda kwehurombo, ivo. vaizomanikidzwa kusiya.

Kunyatsotarisirwa kunopiwawo kune vashandi vezvehutano muchipatara, akadzidziswa kuzivikanwa, kuongororwa, kutumira, uye manejimendi ezve retinoblastoma kesi. CBM Italia inoitawo mabasa akadzama ekusimudzira ruzivo munharaunda kushandura maonero echirwere uye kuona kuti vana vane matambudziko ekuona havangoongororwa nekukasika chete asiwo vanogamuchirwa nenharaunda pachayo.

Ndiani CBM Italia

CBM Italia ndiyo sangano repasi rese yakazvipira kuhutano, dzidzo, basa, uye kodzero dzevanhu vakaremara uko kunonyanya kudiwa, pasi rose uye muItaly. Mugore rapfuura (2022), yakaita zvirongwa 43 munyika 11 muAfrica, Asia, uye Latin America, zvichisvika vanhu 976,000 15; muItaly, yakaita zvirongwa XNUMX. www.cbmitalia.org

Chirongwa chekusimudzira ruzivo "Kubva muMimvuri, kune Kodzero yeKuona uye Kuonekwa,” yakatangwa pachiitiko che Zuva Rokuona Pasi Pose, ine chinangwa chekuona kuchengetwa kwemaziso kwevanhu vangangosvika miriyoni gore rega rega munyika dzeGlobal South, nekuda kwekudzivirira, kurapwa, nekugadzirisa zvirongwa zvehurema hwekuona nekubatanidzwa munharaunda.

CBM Italia chikamu cheCBM - Christian Blind Mission, sangano rinozivikanwa neWHO nekuzvipira kwaro kweanopfuura makore zana negumi pakupa kutariswa kwemaziso kunowanikwa uye kwemhando yepamusoro. Mugore rapfuura, CBM yakaita 391 mapurojekiti munyika 44 pasi rose, anosvika 8.8 miriyoni vanobatsirwa.

Iko kwapera 2 bhiriyoni munyika yose nematambudziko ekuona. Hafu yeizvi, pamusoro 1 bhiriyoni, vanonyanya kutariswa munyika dzichiri kusimukira, uko vasina kuwana rubatsiro rwekutarisira maziso. Zvakadaro 90% yezvese kukanganiswa kwekuona zvinodziviririka uye zvinorapika. (kwakabva: World Report on Vision, WHO 2019).

Sources

• CBM Italia kuburitswa kwenhau