I-CBM Italia e-Uganda: Ibali likaDot, umntwana oneminyaka eli-9 ubudala ochatshazelwe yiRetinoblastoma, iTumor yeRetinal ebeka esichengeni ubomi babantwana kuMzantsi weGlobal.

I-retinoblastoma sisigulo ithumba kwi-retina ifumaneka rhoqo kwi izigulana zabantwana.

Ukuba ishiywe ingafunyaniswanga, yiloo nto kukhokelela ekulahlekelweni kombono kwaye, kwiimeko ezinzima, ukufa.

“Le ntombazana inengxaki yamehlo,” liqala ibali lika Dot, intombazana eneminyaka esi-9 ubudala eyazalelwa kwilali esemaphandleni South Sudan kwaye ichatshazelwe yi-retinoblastoma, ithumba elibi le-retina elichaphazela minyaka le 9,000 abantwana kwihlabathi jikelele (umthombo: i-American Academy of Ophthalmology). Ngumama ophawula ukuba kukho undonakele; iliso lentombi yakhe lidumbe kakhulu, yaye uxelela umyeni wakhe uDavid, ngoku oseJuba, elikomkhulu, ofunda kunyaka wesibini wezifundo zakhe zeyunivesithi yezolimo.

“Abadala basekuhlaleni bathi ayinyanisekanga. Bazamile amayeza esintu, kodwa ayizange ibe bhetele. Ngelo xesha, ndathi mabamzise apha edolophini apho kukho indawo yamehlo enokusinceda,” UDavid uxelela iCBM Italia - umbutho wamazwe ngamazwe ozinikele kwimpilo, imfundo, ingqesho, kunye namalungelo abantu abakhubazekileyo kwihlabathi jikelele nase-Italiya - esebenza ngamahlakani asekuhlaleni kumazwe asakhasayo, afana ne-BEC - Buluk Eye Centre eMzantsi Sudan kunye Isibhedlele saseRuharo Mission eUganda.

Emva kokuhamba ubusuku bonke, UDot noDavide ekugqibeleni bakunye kwakhona: “Sathi sakufika, ndakhawuleza ndamsa kwi-BEC, ekuphela kwendawo yamehlo apha. Bamxilonga, kwaza kwafunyaniswa ukuba: umhlaza wamehlo. Oogqirha bandixelela ukuba kufuneka enziwe utyando eRuharo, ngoko sahamba.” Isibhedlele saseRuharo Mission, eseMbarara kwintshona yeUganda, yindawo ekubhekiselwa kuyo kunyango lomhlaza wamehlo kulo mmandla waseAfrika.

UDavid noDot bakhwela i-a Iikhilomitha ezingama-900 ukusuka eJuba ukuya eMbarara: “UDot wamkelwa ngoko nangoko ngoogqirha abamxilongayo, bamtyanda baza bamnika ichemotherapy. Sasilapho ukusuka ngoMeyi ukuya ku-Okthobha kulo nyaka uphelileyo, sobabini silandele kwaye sincedisa yonke imihla ukujongana neli dabi linzima lobomi. Kwaye, intombazana yam, iliphumelele idabi layo!”

Njengoko kwenzeka rhoqo kule mimandla yase-Afrika engaphantsi kwe-Sahara, ekubeni isifo asibonwa kwaye siphathwa ngexesha, xa uDot efika esibhedlele, ithumba lalikwinqanaba eliphezulu, nto leyo eyakhokelela ekubeni alahlekelwe liliso: “Ukuba neglasi aliyongxaki enkulu; ungasinda. Abantwana basenokwenza izinto ezininzi, bade baphathe ubhaka nokuya esikolweni. Ingxaki nje kukuba usemncinci kwaye ufuna indawo entle nekhuselekileyo. Indawo apho abantu banolwazi ngezi ziphene; ukuba bendinokumbuyisela elalini ngoku, ndicinga ukuba bebenokumshiya ecaleni.”

Nangona isifo sambetha, uDot uphilile, kwaye ibali lakhe lesiphelo elonwabisayo limele ithemba kubantwana abaninzi abachatshazelwe yi-retinoblastoma: “Ukuba neliso elinye akuthethi kuthi yonke into iphelile. Ngexesha elizayo xa umbona ukuba ndiyakwazi ukulawula, uyakuba ngumntwana ofundileyo. Ndiza kumsa kwisikolo esilungileyo; uya kufunda, afunde nabantwana bezizwe ngezizwe.”

Ibali likaDot lelinye labaninzi abaqokelelwe yi-CBM Italia eUganda malunga namathumba abuhlungu abonwayo okanye i-retinoblastoma. Isifo, kuso inqanaba lokuqala, isipho esimhlophe reflex kwiliso (leukocoria) okanye kunye ukutenxa kwamehlo (i-strabismus); kwiimeko ezinzima ngakumbi, it kubangela deformation kunye nokudumba kakhulu. Okubangelwa ziziphoso zofuzo, izinto zemfuzo, okanye ezo zinokuthi zenzeke kwiminyaka yokuqala yobomi (kwiimeko ezininzi kwiminyaka emi-3), i-retinoblastoma inokukhula kwelinye okanye omabini amehlo kwaye ichaphazele nezinye izitho.

Ukuba ayiphathwa ngokukhawuleza, olu hlobo lwethumba lunemiphumo emibi: ukusuka ekulahlekelweni kombono ukuya ekulahlekeni kwamehlo, ekufeni.

Kumazwe e IGlobal South, intlupheko, ukungabikho kokuthintela, ukungabikho kwezibonelelo ezikhethekileyo, kunye noogqirha zizinto ezithintela ukuxilongwa kwangaphambili kwe-retinoblastoma, igalelo ekuqhubeni isangqa esibi esidibanisa ubuhlwempu kunye nokukhubazeka: kwanele ukucinga ukuba izinga lokusinda kwabantwana kwisifo ngu-65 I-% kumazwe anengeniso ephantsi, ngelixa inyuka iye kuma-96% kumazwe anengeniso ephezulu apho ukuxilongwa kwangoko kunokwenzeka.

Ngenxa yesi sizathu, kuba 2006, CBM uye waqhuba inkqubo ebalulekileyo yothintelo kunye nonyango lwe-retinoblastoma kwiSibhedlele seMishini yaseRuharo, ethe ekuhambeni kwexesha yandisa ukusinda kwabantwana, kunye nokwenzeka kokuphiliswa ngokupheleleyo, ngelixa igcina umbono. Ndiyabulela ukuqaliswa koluhlu lwezonyango ezidibeneyo (i-radiotherapy, unyango lwe-laser, i-cryotherapy, i-chemotherapy, ukususwa kweso liso, ukusetyenziswa kwe-prostheses), kunye nemisebenzi yokwazisa kule ndawo, namhlanje, i-Ruharo inyamekela izigulane ezininzi ezincinci, I-15% yabo ivela: IDemocratic Republic of Congo, iSouth Sudan, iRwanda, iBurundi, iTanzania, iKenya, neSomalia.

I-CBM Italia, ngokukodwa, ixhasa iSibhedlele seMishini yaseRuharo ngokuqinisekisa utyelelo olukhawulezileyo kunye noxilongo, ukungenelela kokuhlinzwa, ukulaliswa esibhedlele, kunye nonyango lwexesha elide kubantwana be-175 abachatshazelwa yi-retinoblastoma ngonyaka.

Injongo kukwamkela nokunyanga Abantwana abatsha abali-100 ngonyaka, ngelixa ama-75 eqhubeka nonyango oluqalwe kwiminyaka edlulileyo. Le projekthi ikwaxhasa iintsapho (evela kwiindawo ezikude kakhulu nakwiindawo ezisemaphandleni) ngexesha lokuhlala esibhedlele, ukuhlawulela iindleko zokutya, iindleko zokuthutha ukutyelela amaninzi, ukungenelela kweengcebiso, kunye nenkxaso yengqondo ukuze kuqinisekiswe ukuba izigulane ezincinci zilandela ngokupheleleyo inkqubo yonyango, ngaphandle koko, ngenxa yentlupheko. kuya kunyanzeleka ukuba ayeke.

Ingqwalasela eyodwa ikwanikwa abasebenzi bezempilo esibhedlele, uqeqeshelwe ukuchongwa, ukuxilongwa, ukuthunyelwa, kunye nokulawula iimeko ze-retinoblastoma. I-CBM Italia ikwaqhuba imisebenzi enzulu yokwazisa uluntu ukuba itshintshe indlela esijongwa ngayo esi sifo kwaye iqinisekise ukuba abantwana abanengxaki yokubona abajongi nje ngokukhawuleza kodwa bamkelwe luluntu ngokwalo.

Ngubani i-CBM Italia

I-CBM Italia yi umbutho wamazwe uzibophelele kwimpilo, imfundo, ingqesho, kunye namalungelo abantu abakhubazekileyo apho ifuneka kakhulu, kwihlabathi jikelele nase-Itali. Kulo nyaka uphelileyo (ngowama-2022), iye yaphumeza iiprojekthi ezingama-43 kumazwe ali-11 eAfrika, eAsia nakuMbindi Merika, efikelela kubantu abangama-976,000 15; eItali, iphumeze iiprojekthi ezili-XNUMX. www.cbmitalia.org

Iphulo lokwazisa abantu “Ngaphandle kweMithunzi, ngenxa yeLungelo lokuBonwa nokubonwa,” yasungulwa kumsitho we USuku lokuBona lweHlabathi, ijolise ekuqinisekiseni ukunakekelwa kwamehlo malunga ne-1 yezigidi zabantu minyaka yonke kumazwe e-Global South, ngenxa yokuthintela, unyango, kunye neeprojekthi zokubuyisela kwimeko yokukhubazeka okubonakalayo kunye nokubandakanywa kuluntu.

I-CBM Italia yinxalenye ye-CBM - I-Christian Blind Mission, umbutho owamkelwa yi-WHO ngokuzibophelela kwawo ngaphezu kweminyaka eyi-110 ekuboneleleni ngokufikeleleka kunye nokhathalelo lwamehlo olusemgangathweni. Kulo nyaka uphelileyo, i-CBM iphunyeziwe Iiprojekthi ezingama-391 kumazwe angama-44 kwihlabathi liphela, zifikelela kwi-8.8 yezigidi zabaxhamli.

Kukho I-2 yezigidigidi zabantu kwihlabathi jikelele ngeengxaki zombono. Isiqingatha sezi, ngaphezulu I-1 yezigidigidi zabantu, zigxininiswe kakhulu kumazwe asakhasayo, apho bengenakho ukufikelela kwiinkonzo zokunakekelwa kwamehlo. Kodwa i-90% yazo zonke izithintelo ezibonakalayo ziyathintelwa kwaye ziyanyangeka. (umthombo: Ingxelo yeHlabathi kuMbono, WHO 2019).

imithombo

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