I-CBM Italia e-Uganda: Indaba ka-Dot, Ingane Eneminyaka eyi-9 ethintwa yi-Retinoblastoma, I-Retinal Tumor Ebeka Izimpilo Zezingane Engozini eNingizimu Yomhlaba.

Retinoblastoma inonya isimila se-retina ngokuvamile etholakala ku iziguli ezingane.

Uma ishiywe ingaxilongwa, yona kuholela ekulahlekelweni kombono futhi, ezimweni ezinzima, ukufa.

“Le ntombazane inenkinga yamehlo,” iqala indaba ka I-Dot, intombazane eneminyaka engu-9 ubudala eyazalelwa endaweni yasemakhaya South Sudan futhi ithinteke i-retinoblastoma, isimila esibi se-retina esithinta minyaka yonke Izingane ze-9,000 emhlabeni wonke (umthombo: I-American Academy of Ophthalmology). Ngumama obona ukuthi kukhona okungahambi kahle; Iso lendodakazi yakhe livuvukele kakhulu, futhi utshela umyeni wakhe uDavid, okwamanje oseJuba, inhloko-dolobha, ofunda unyaka wesibili wezifundo zakhe zaseyunivesithi yezolimo.

“Abadala bakithi bathe akunankinga. Bazama amakhambi athile, kodwa awazange abe ngcono. Ngaleso sikhathi ngabatshela ukuthi bamlethe lapha edolobheni lapho kunesikhungo samehlo esingasisiza,” UDavid utshela i-CBM Italia - inhlangano yamazwe ngamazwe ezibophezele kwezempilo, imfundo, umsebenzi, namalungelo abantu abakhubazekile emhlabeni wonke nase-Italy - esebenza ngokusebenzisana nabalingani bendawo emazweni asathuthuka, njenge-BEC - I-Buluk Eye Centre eSouth Sudan kanye Isibhedlela saseRuharo Mission e-Uganda.

Ngemva kokuhamba ubusuku bonke, UDot noDavid ekugcineni sebendawonye futhi: “Lapho sifika, ngamyisa e-BEC, okuwukuphela kwesikhungo samehlo lapha. Bamhlola, futhi kwatholakala ukuthi: umdlavuza wamehlo. Odokotela bangitshele ukuthi udinga ukuhlinzwa eRuharo, ngakho sahamba.” Isibhedlela saseRuharo Mission, etholakala eMbarara entshonalanga ye-Uganda, iyindawo okubhekiselwa kuyo ekwelapheni umdlavuza wamehlo kule ngxenye ye-Afrika.

UDavid noDot bagibela i-a Amakhilomitha angama-900 ukusuka eJuba ukuya eMbarara: “UDot wamukelwa ngokushesha odokotela abamhlola, bamhlinza, bamelapha ngamakhemikhali. Sasilapho kusukela ngoMeyi kuya ku-Okthoba wonyaka odlule, sobabili silandela futhi sisiza nsuku zonke ukubhekana nale mpi enzima yokuphila. Futhi, ingane yami, wayinqoba impi yakhe!”

Njengoba kuvame ukwenzeka kulezi zindawo zase-Afrika eseningizimu yeSahara, njengoba lesi sifo singaziwa futhi siphathwa ngesikhathi, lapho uDot efika esibhedlela, isimila sase sisezingeni eliphezulu, okuholela ekulahlekelweni kweso: “Ukuba neso lengilazi akuyona inkinga enkulu; ungasinda. Izingane zisakwazi ukwenza izinto eziningi, ngisho nokuphatha ubhaka nokuya esikoleni. Inkinga nje ukuthi usemncane futhi udinga indawo enhle nephephile. Indawo lapho abantu beqaphela lokhu kukhubazeka; uma ngingambuyisela esigodini manje, ngicabanga ukuthi bazomshiya eceleni.”

Naphezu kwesifo esamshaya, uDot uphilile, futhi indaba yakhe yesiphetho esijabulisayo imele ithemba ngezingane eziningi ezithintwe yi-retinoblastoma: “Ukuba neso elilodwa akusho ukuthi sekuphelile. Ngokuzayo uma umbona, uma ngikwazi ukukuphatha, uzoba ingane efundile. Ngizomyisa esikoleni esihle; uzofunda, afunde nezingane zezinhlanga ezahlukene.”

Indaba kaDot ingenye yeziningi i-CBM Italia eziqoqile e-Uganda mayelana nezimila eziyingozi zamehlo noma i-retinoblastoma. Isifo, kuso isigaba sokuqala,ethula ngesimhlophe reflex esweni (leukocoria) noma nge ukuchezuka kwamehlo (i-strabismus); ezimweni ezinzima kakhulu, it kubangela deformation kanye nokuvuvukala ngokweqile. Ibangelwa amaphutha ofuzo, izici zofuzo, noma lezo ezingase zenzeke phakathi neminyaka yokuqala yokuphila (ezimweni eziningi phakathi neminyaka emi-3), i-retinoblastoma ingakhula kwelinye noma womabili iso futhi ithinte nezinye izitho.

Uma ingelashwa ngokushesha, lolu hlobo lwesimila lunemiphumela emibi kakhulu: kusukela ekulahlekelweni umbono kuya ekulahlekelweni amehlo, ekufeni.

Emazweni ase- IGlobal South, ubumpofu, ukuntuleka kokuvimbela, ukungabi khona kwezikhungo ezikhethekile, nodokotela yizici ezivimbela ukutholakala kwe-retinoblastoma kusenesikhathi, okunomthelela ekubhebhezeleni umbuthano ononya oxhumanisa ubumpofu nokukhubazeka: kwanele ukucabanga ukuthi izinga lokusinda kwezingane kulesi sifo lingama-65 % emazweni anemali engenayo ephansi, kuyilapho ikhuphukela ku-96% emazweni anemali engenayo ephezulu lapho ukuxilongwa kusenesikhathi kungenzeka khona.

Ngenxa yalesi sizathu, kusukela 2006, I-CBM ubelokhu enza uhlelo olubalulekile lokuvimbela nokwelashwa kwe-retinoblastoma esibhedlela sase-Ruharo Mission, okuthe ngokuhamba kwesikhathi kwandise ukusinda kwezingane, kanye nethuba lokuphulukiswa okuphelele, kuyilapho futhi kugcinwa ukubona. Ngenxa yokwethulwa kochungechunge lwezindlela zokwelapha ezihlangene (i-radiotherapy, i-laser therapy, i-cryotherapy, i-chemotherapy, ukukhishwa kweso ngokuhlinzwa, ukusetshenziswa kwezitho zokwenziwa), kanye nemisebenzi yokuqwashisa endaweni, namuhla, uRuharo unakekela iziguli eziningi ezisencane, U-15% wabo uqhamuka: IDemocratic Republic of Congo, iSouth Sudan, iRwanda, iBurundi, iTanzania, iKenya, neSomalia.

I-CBM Italia, ikakhulukazi, isekela i-Ruharo Mission Hospital ngokuqinisekisa ukuvakashelwa ngokushesha kanye nokuxilongwa, ukungenelela kokuhlinzwa, ukulaliswa esibhedlela, nokwelashwa kwesikhathi eside kwezingane ze-175 ezithintekayo yi-retinoblastoma unyaka ngamunye.

Umgomo uwukwamukela nokuphatha Izingane ezintsha eziyi-100 njalo ngonyaka, kuyilapho abangu-75 beqhubeka nokwelapha okuqale eminyakeni edlule. Lolu hlelo luphinde lweseke imindeni (evela ezindaweni ezikude kakhulu nezisemaphandleni) ngesikhathi sokulala esibhedlela, ukukhokhela izindleko zokudla, izindleko zokuhamba zokuvakasha okuningi, ukungenelela kokwelulekwa, nokusekelwa kwengqondo ukuze kuqinisekiswe ukuthi iziguli ezisencane zilulandela ngokugcwele uhlelo lokwelashwa okuthi, ngaphandle kwalokho, ngenxa yobumpofu, uzophoqeleka ukuthi ayeke.

Ukunakwa okukhethekile nakho kunikezwe abasebenzi bezempilo esibhedlela, abaqeqeshelwe ukuhlonza, ukuxilonga, ukudluliselwa, nokuphatha amacala e-retinoblastoma. I-CBM Italia iphinde yenza imisebenzi ejulile yokuqwashisa emiphakathini ukuze iguqule umbono walesi sifo futhi iqinisekise ukuthi izingane ezinenkinga yokubona azihlolisiswa ngokushesha nje kuphela kodwa futhi zamukelwa umphakathi ngokwawo.

Ngubani i-CBM Italia

I-CBM Italia iyinhlangano inhlangano yamazwe omhlaba uzibophezele kwezempilo, imfundo, umsebenzi, kanye namalungelo abantu abakhubazekile lapho kudingeka kakhulu, emhlabeni wonke nase-Italy. Ngonyaka odlule (2022), iye yaqalisa imiklamo engu-43 emazweni angu-11 e-Afrika, e-Asia, naseLatin America, efinyelela abantu abayizi-976,000 15; e-Italy, isisebenzise amaphrojekthi ayi-XNUMX. www.cbmitalia.org

Umkhankaso wokuqwashisa abantu “Ngaphandle Kwethunzi, Ngelungelo Lokubona Futhi Ubonwe,” yethulwa emcimbini we Usuku Lomhlaba Lokubona, ihlose ukuqinisekisa ukunakekelwa kwamehlo cishe kubantu abayizigidi ezingu-1 minyaka yonke emazweni aseGlobal South, ngenxa yokuvimbela, ukwelashwa, kanye namaphrojekthi okubuyisela abantu abangaboni kahle kanye nokufakwa emphakathini.

I-CBM Italia iyingxenye ye-CBM - Christian Blind Mission, inhlangano eyaziwa yi-WHO ngokuzibophezela kwayo iminyaka engaphezu kwe-110 ekuhlinzekeni ukunakekelwa kwamehlo okufinyelelekayo nokusezingeni eliphezulu. Onyakeni odlule, i-CBM iqalise ukusebenza Amaphrojekthi angama-391 emazweni angama-44 emhlabeni jikelele, afinyelela kubazuzi abayizigidi eziyi-8.8.

Kuphelile Abantu abayizigidi eziyizinkulungwane ze-2 emhlabeni wonke ngezinkinga zokubona. Ingxenye yalokhu, iphelile Abantu abayizigidi eziyizinkulungwane ze-1, zigxile kakhulu emazweni asathuthuka, lapho bengenakho ukufinyelela ezinsizeni zokunakekelwa kwamehlo. Nokho u-90% wakho konke ukukhubazeka kokubona kuyavikeleka futhi kuyalapheka. (umthombo: I-World Report on Vision, WHO 2019).

Imithombo

• Ukukhishwa kwabezindaba kwe-CBM Italia