CBM Italia ma Uganda: ʻO ka moʻolelo ʻo Dot, he 9-makahiki i hoʻopilikia ʻia e Retinoblastoma, kahi maʻi maʻi Retinal e hoʻoweliweli ana i nā ola o nā keiki ma ka honua Hema.

Retinoblastoma he mea ino ʻo ke koko o ka retina loaʻa mau ma nā maʻi pediatric.

Inā haʻalele ʻole ʻia, ʻo ia alakai i ka poho o ka ike a i nā hihia koʻikoʻi, make.

"He pilikia ko kēia kaikamahine i kona mau maka," i hoʻomaka ai ka moʻolelo o kiko, he kaikamahine 9 makahiki i hanauia ma ke kauhale kuaaina ma South Sudan a hoʻopilikia ʻia e ka retinoblastoma, kahi maʻi maʻi ʻino o ka retina e pili ana i kēlā me kēia makahiki Nā keiki 9,000 honua (kumu: American Academy of Ophthalmology). ʻO ka makuahine ka mea i ʻike he hewa; ua pehu loa ka maka o kana kaikamahine, a ua hai aku oia i kana kane ia David, aia i keia manawa ma Iuba, ke kapikala, e hele ana i ka makahiki elua o kana papa kulanui mahiai.

“Ua ʻōlelo nā lunakahiko o ko mākou kaiāulu ʻaʻole ia he koʻikoʻi. Ua ho'āʻo lākou i kekahi mau lāʻau lapaʻau, akā ʻaʻole i maikaʻi. I kēlā manawa, ua ʻōlelo au iā lākou e lawe mai iā ia i ke kūlanakauhale kahi i loaʻa ai kahi kikowaena maka e hiki ke kōkua iā mākou. Ua haʻi ʻo David iā CBM Italia - he hui honua i kūpaʻa i ke olakino, hoʻonaʻauao, hana, a me nā kuleana o ka poʻe me ke kino kīnā ma ka honua holoʻokoʻa a ma Italia - e hana ana ma o nā hoa kūloko i nā ʻāina ulu, e like me ka BEC - Kikowaena Maka Buluk ma Sudan Hema a me ka Halemai Misiona o Ruharo ma Uganda.

Ma hope o ka hele ʻana i ka pō a pau, Ua hui hou ʻo Dot lāua ʻo David: “I ko makou hiki ana, ua lawe koke au ia ia i ka BEC, ke kikowaena maka wale no maanei. Ua nānā lākou iā ia, a ʻo ka maʻi maʻi: ka maʻi maʻi maka. Ua haʻi mai nā kauka iaʻu he pono e hana ʻia ʻo ia ma Ruharo, no laila ua haʻalele mākou. Halemai Misiona o Ruharo, aia ma Mbarara ma ke komohana o Uganda, he wahi kuhikuhi no ka mālama ʻana i ka maʻi maʻi maka ma kēia ʻāpana o ʻApelika.

Hoʻomaka ʻo David lāua ʻo Dot i kahi 900 km huakaʻi mai Juba a Mbarara: “Ua hoʻokipa koke ʻia ʻo Dot e nā kauka nāna i nānā iā ia, hoʻopaʻa iā ia, a lawelawe i ka chemotherapy. Ma laila mākou mai Mei a ʻOkakopa i ka makahiki i hala, ua hahai lāua a kōkua i kēlā me kēia lā e kū i kēia kaua paʻakikī no ke ola. A e kaʻu poʻe liʻiliʻi, ua lanakila ʻo ia i kāna kaua!"

E like me ka hana pinepine ʻana ma kēia mau wahi ʻApelika ma lalo o Saharan, ʻoiai ʻaʻole ʻike ʻia ka maʻi a mālama ʻia i ka manawa, i ka wā i hōʻea ai ʻo Dot i ka haukapila, aia ke koko i kahi pae mua, e alakai ana i ka nalo ana o kona maka: “Aole he pilikia nui ka loaa ana o ka maka aniani; hiki iā ʻoe ke ola. Hiki i nā keiki ke hana i nā mea he nui, ʻo ka lawe ʻana i kahi ʻeke a hele i ke kula. ʻO ka pilikia wale nō ʻo ia he ʻōpiopio a makemake i kahi kaiapuni nani a palekana. He wahi e ʻike ai nā kānaka i kēia mau hemahema; inā wau e hoʻihoʻi iā ia i kauhale i kēia manawa, manaʻo wau e haʻalele lākou iā ia."

ʻOiai ka maʻi i paʻi iā ia, ua ola ʻo Dot, a ʻO kāna moʻolelo hope hauʻoli e hōʻike ana i ka manaolana no nā keiki he nui i hoʻopilikia ʻia e ka retinoblastoma: “ʻO ka loaʻa ʻana o ka maka hoʻokahi ʻaʻole ia he manaʻo ua pau. I ka wā e ʻike ai ʻoe iā ia, inā hiki iaʻu ke hoʻokele, he keiki naʻauao ʻo ia. E lawe au iā ia i ke kula maikaʻi; e aʻo ʻo ia, e aʻo pū me nā keiki o nā lāhui like ʻole.

ʻO ka moʻolelo a Dot kekahi o nā mea he nui i hōʻiliʻili ʻia e CBM Italia ma Uganda e pili ana i nā maʻi maʻi ocular ocular a i ʻole retinoblastoma. ʻO ka maʻi, i kona pae mua, makana me kahi keʻokeʻo reflex i ka maka (leukocoria) a me kaʻe ʻana o ka maka (strabismus); ma nā hihia ʻoi aku ka koʻikoʻi, ʻo ia ke kumu o ka deformation a me ka pehu loa. Ma muli o nā hewa genetic, nā kumu hoʻoilina, a i ʻole nā ​​mea e hiki mai ana i nā makahiki mua o ke ola (i ka nui o nā hihia i loko o 3 mau makahiki), hiki ke ulu ka retinoblastoma i hoʻokahi a i ʻole nā ​​​​maka ʻelua a pili pū kekahi i nā kino ʻē aʻe.

Inā ʻaʻole mālama koke ʻia, He hopena koʻikoʻi ko kēia ʻano ʻokoʻa: mai ka nalo ana o ka ike a ka poho o ka maka, a hiki i ka make.

Ma na aina o ka Global Hema, ʻilihune, nele i ka pale ʻana, ʻaʻohe o nā keʻena kūikawā, a ʻo nā kauka nā mea e keʻakeʻa nei i ka ʻike mua ʻana o ka retinoblastoma, e kōkua ana i ka hoʻoulu ʻana i ka pōʻai ʻino e hoʻopili ana i ka ʻilihune a me ke kīnā: ua lawa ka manaʻo he 65 ke ola o nā keiki i ka maʻi. % ma nā ʻāina haʻahaʻa, ʻoiai e piʻi ana i 96% ma nā ʻāina kiʻekiʻe kahi e hiki ai ke hōʻoia mua.

No keia kumu, mai 2006, CBM ua hoʻokō ʻo ia i kahi papahana pale a me ka mālama ʻana i ka retinoblastoma koʻikoʻi ma ka Halemai Misiona ʻo Ruharo, i ka manawa i hoʻonui ai i ke ola o nā keiki, me ka hiki ke ho'ōla piha, ʻoiai e mālama ana i ka ʻike. Mahalo i ka hoʻokomo ʻana o kahi ʻano o nā lāʻau lapaʻau i hui pū ʻia (radiotherapy, laser therapy, cryotherapy, chemotherapy, surgical removal o ka maka, hoʻohana i nā prostheses), a me nā hana hoʻonui i ka ʻike ma ia wahi, i kēia lā, mālama ʻo Ruharo i nā maʻi ʻōpio he nui. 15% o lākou mai: Lepupalika Demokarata o Congo, South Sudan, Rwanda, Burundi, Tanzania, Kenya, a me Somalia.

Kākoʻo ʻo CBM Italia, ʻo ia hoʻi, i ka Halemai Misiona Ruharo ma ka hōʻoia ʻana nā kipa koke a me nā hōʻailona, nā hana ʻoki kino, nā halemaʻi, a me nā mālama lōʻihi no nā keiki 175 i hoʻopilikia ʻia e ka retinoblastoma i kēlā me kēia makahiki.

ʻO ka pahuhopu ka hoʻokipa a mālama 100 keiki hou i kēlā me kēia makahiki, ʻoiai ʻo 75 e hoʻomau i ka hoʻomaka ʻana o ka therapy i nā makahiki i hala. Kākoʻo pū ka papahana i nā ʻohana (mai nā wahi mamao loa a me nā kua'āina) i ka wā e noho ai i ka haukapila, e uhi ana i nā kumukūʻai no ka ʻai, nā lilo o ka halihali no nā kipa he nui, nā ʻōlelo aʻoaʻo, a me ke kākoʻo psychosocial e hōʻoia i ka hahai pono ʻana o nā maʻi ʻōpio i ka papahana lapaʻau, inā ʻaʻole, ma muli o ka ʻilihune, e koi ʻia e haʻalele.

Hāʻawi ʻia ka nānā kūikawā i ka nā limahana mālama ola o ka haukapila, i hoʻomaʻamaʻa ʻia no ka ʻike, hōʻoia, kuhikuhi ʻana, a me ka mālama ʻana i nā hihia retinoblastoma. Hana pū ʻo CBM Italia i nā hana hoʻonui ʻike i nā kaiāulu e hoʻololi i ka ʻike o ka maʻi a me ka hōʻoia ʻana ʻaʻole i nānā koke ʻia nā keiki me nā pilikia ʻike akā ua ʻae ʻia e ke kaiāulu ponoʻī.

ʻO wai ʻo CBM Italia

ʻO CBM Italia kahi hui honua hana i ke olakino, ka hoʻonaʻauao, ka hana, a me nā kuleana o ka poʻe me ke kino kīnā i kahi e pono ai, ma ka honua a ma Italia. I ka makahiki i hala (2022), ua hoʻokō ʻo ia i nā papahana 43 ma 11 mau ʻāina ma ʻApelika, ʻAsia, a me Latin America, a hiki i ka 976,000 poʻe; ma Italia, ua hoʻokō ʻo ia i nā papahana 15. www.cbmitalia.org

ʻO ka hoʻolaha hoʻolaha "Ma waho o ka Malu, no ka Pono e ʻike a ʻike ʻia," i hoʻokuʻu ʻia ma ka manawa o ʻO ka lā ʻike honua, Ke manaʻo nei e hōʻoia i ka mālama maka no ka aneane 1 miliona mau kānaka i kēlā me kēia makahiki ma nā ʻāina o ka Global South, mahalo i ka pale ʻana, ka mālama ʻana, a me nā papahana hoʻoponopono no nā hemahema ʻike a me ke komo ʻana i ke kaiāulu.

ʻO CBM Italia kahi ʻāpana o CBM - Christian Blind Mission, kahi hui i ʻike ʻia e ka WHO no kāna kūpaʻa ʻana no nā makahiki 110 i ka hoʻolako ʻana i ka mālama maka kūpono a maikaʻi. I ka makahiki i hala, ua hoʻokō ʻo CBM 391 mau papahana ma 44 mau ʻāina ma ka honua holoʻokoʻa, a hiki i 8.8 miliona mau mea kōkua.

Ua hala 2 biliona kanaka honua me nā pilikia ʻike. ʻO ka hapalua o kēia, ua hala 1 biliona kanaka, ka mea nui i nā ʻāina e ulu nei, kahi i nele ai lākou i nā lawelawe mālama maka. Eia naʻe, hiki ke pale ʻia a mālama ʻia ka 90% o nā hemahema ʻike. (kumu: World Report on Vision, WHO 2019).

kumu

• Hoʻokuʻu paʻi CBM Italia