CBM Italia ku Uganda: Nkhani ya Dot, Wazaka 9 Wokhudzidwa ndi Retinoblastoma, Chotupa cha Retinal Choika Pangozi Miyoyo ya Ana ku Global South

Retinoblastoma ndi zoipa chotupa cha retina zopezeka mu odwala ana.

Ngati sichinazindikiridwe, icho kumabweretsa kuwonongeka kwa masomphenya ndipo muzovuta kwambiri, imfa.

“Mtsikana ameneyu ali ndi vuto ndi maso,” ikuyamba nkhani ya dontho, mtsikana wazaka 9 wobadwira m’mudzi wina kumudzi Sudan South komanso kukhudzidwa ndi retinoblastoma, chotupa choyipa cha retina chomwe chimakhudza chaka chilichonse Ana a 9,000 padziko lonse lapansi (gwero: American Academy of Ophthalmology). Ndi mayi amene amaona kuti chinachake chalakwika; diso la mwana wake wamkazi latupa kwambiri, ndipo akuuza mwamuna wake David, amene pakali pano ali ku Juba, likulu la dziko, akuphunzira m’chaka chachiwiri cha maphunziro ake a payunivesite yaulimi.

“Akulu a m’dera lathu ananena kuti si nkhani yaikulu. Iwo anayesa mankhwala azitsamba, koma sizinaphule kanthu. Pamenepo ndinawauza kuti abwere naye kuno kumudzi komwe kuli malo otithandiza m’maso,” David akuuza CBM Italia - bungwe lapadziko lonse lapansi lodzipereka ku zaumoyo, maphunziro, ntchito, ndi ufulu wa anthu olumala padziko lonse lapansi komanso ku Italy - lomwe limagwira ntchito kudzera mwa mabwenzi akumayiko omwe akutukuka kumene, monga BEC - Buluk Eye Center ku South Sudan ndi Chipatala cha Mishoni cha Ruharo mu Uganda.

Titayenda usiku wonse, Dot ndi David ali limodzi kachiwiri: “Titafika, ndinapita naye ku BEC, malo okhawo a maso pano. Iwo anamupima, ndipo matendawo anali: khansa ya m’maso. Madokotala anandiuza kuti akufunika kuchitidwa opaleshoni ku Ruharo, choncho tinanyamuka.” Chipatala cha Mishoni cha Ruharo, yomwe ili ku Mbarara kumadzulo kwa Uganda, ndi malo opangira chithandizo cha khansa ya m'maso kudera lino la Africa.

David ndi Dot ayamba ulendo wa 900 km kuchokera ku Juba kupita ku Mbarara: “Dot analandiridwa mwamsanga ndi madokotala amene anamupima, anam’panga opaleshoni, ndi kum’patsa mankhwala amphamvu. Tinali komweko kuyambira Meyi mpaka Okutobala chaka chatha, tonse tidatsatira ndikuthandiza tsiku lililonse kuthana ndi nkhondo yovutayi ya moyo. Ndipo, mwana wanga, wapambana nkhondo yake!

Zomwe zimachitika nthawi zambiri m'madera akum'mwera kwa Sahara ku Africa, popeza matendawa sazindikirika ndikuchiritsidwa panthawi yake, Dot atafika kuchipatala, chotupacho chinali pamlingo wapamwamba, zomwe zimachititsa kuti diso lake liwonongeke: “Kukhala ndi diso lagalasi si vuto lalikulu; mukhoza kupulumuka. Ana amathabe kuchita zinthu zambiri, ngakhale kunyamula chikwama ndi kupita kusukulu. Vuto lokha ndiloti akadali wamng'ono ndipo amafunikira malo okongola komanso otetezeka. Malo omwe anthu amazindikira olumala; ndikanati ndibwerere naye kumudzi tsopano, ndikuganiza kuti akanamusiya.”

Ngakhale matenda amene anakantha iye, Dot ali bwino, ndipo nkhani yake yomaliza yosangalatsa ikuyimira chiyembekezo kwa ana ambiri omwe akhudzidwa ndi retinoblastoma: “Kukhala ndi diso limodzi sikutanthauza kuti zonse zatha. Nthawi ina mukadzamuwona, ngati ndingathe kuzilamulira, adzakhala mwana wophunzira. Ndimutengera kusukulu yabwino; adzaphunzira, kuphunzira ndi ana a mafuko osiyanasiyana.”

Nkhani ya Dot ndi imodzi mwazambiri zomwe CBM Italia yasonkhanitsa ku Uganda zokhudzana ndi zotupa zowopsa kapena retinoblastoma. Matenda, mwa ake gawo loyambirira, mphatso zokhala ndi zoyera reflex m'maso (leukocoria) kapena ndi diso kupatuka (strabismus); muzovuta kwambiri, izo zimayambitsa deformation ndi kutupa kwambiri. Chifukwa cha zolakwika za majini, zobadwa nazo, kapena zomwe zingachitike m'zaka zoyambirira za moyo (nthawi zambiri mkati mwa zaka 3), retinoblastoma imatha kukula m'maso amodzi kapena onse ndikukhudzanso ziwalo zina.

Ngati sanalandire chithandizo mwachangu, chotupa chamtunduwu chimakhala ndi zotsatira zoyipa: kuchoka m’maso mpaka kutaya maso, mpaka imfa.

M'mayiko a Global South, umphawi, kusowa kwa chitetezo, kusowa kwa malo apadera, ndi madokotala ndi zinthu zomwe zimalepheretsa kutulukira msanga kwa retinoblastoma, zomwe zimathandizira kulimbikitsa gulu loipa lomwe limagwirizanitsa umphawi ndi kulemala: ndikwanira kuganiza kuti chiwerengero cha kupulumuka kwa ana ku matendawa ndi 65 % m'maiko opeza ndalama zochepa, pomwe ikukwera mpaka 96% m'maiko opeza ndalama zambiri komwe kuzindikirika msanga ndikotheka.

Pachifukwa ichi, kuyambira 2006, CBM wakhala akugwira ntchito yofunika kwambiri yopewera matenda a retinoblastoma ku chipatala cha Ruharo Mission, chomwe m'kupita kwa nthawi chawonjezera kupulumuka kwa ana, pamodzi ndi kuthekera kwa machiritso athunthu, komanso kusunga masomphenya. Chifukwa cha kukhazikitsidwa kwa mankhwala ophatikizika (radiotherapy, laser therapy, cryotherapy, chemotherapy, opaleshoni yochotsa diso, kugwiritsa ntchito ma prostheses), ndi ntchito zodziwitsa anthu m'deralo, lero, Ruharo amasamalira odwala ambiri achichepere, 15% mwa omwe amachokera ku: Democratic Republic of Congo, South Sudan, Rwanda, Burundi, Tanzania, Kenya, ndi Somalia.

CBM Italia, makamaka, imathandizira Chipatala cha Mishoni cha Ruharo powonetsetsa kuyendera mwamsanga ndi matenda, njira zothandizira opaleshoni, zipatala, ndi chithandizo cha nthawi yaitali kwa ana a 175 omwe amakhudzidwa ndi retinoblastoma chaka chilichonse.

Cholinga chake ndikulandira ndikuchiritsa Ana 100 atsopano chaka chilichonse, pamene 75 akupitirizabe mankhwala omwe adayamba zaka zapitazo. Ntchitoyi imathandizanso mabanja (ochokera kumadera akutali kwambiri ndi akumidzi) panthawi yogona m'chipatala, kulipira ndalama zogulira chakudya, ndalama zoyendera maulendo ambiri, chithandizo chauphungu, ndi chithandizo chamaganizo kuti athe kuonetsetsa kuti odwala achichepere amatsatira ndondomeko ya chithandizo kuti, mwinamwake, chifukwa cha umphawi, iwo adzakakamizidwa kusiya.

Chisamaliro chapadera chimaperekedwanso kwa ogwira ntchito zachipatala m'chipatala, ophunzitsidwa kuzindikira, kuzindikira, kutumiza, ndi kuyang'anira milandu ya retinoblastoma. CBM Italia imachitanso ntchito zodziwitsa anthu zambiri m'madera kuti asinthe malingaliro a matendawa ndikuwonetsetsa kuti ana omwe ali ndi vuto la masomphenya samangoyang'aniridwa nthawi yomweyo komanso amavomerezedwa ndi anthu ammudzi.

CBM Italia ndi ndani

CBM Italia ndi bungwe lapadziko lonse lapansi odzipereka ku thanzi, maphunziro, ntchito, ndi ufulu wa anthu olumala kumene kuli kofunikira, padziko lonse lapansi komanso ku Italy. M’chaka chapitacho (2022), yakhazikitsa ntchito 43 m’mayiko 11 mu Africa, Asia, ndi Latin America, zimene zafikira anthu 976,000; ku Italy, yakhazikitsa ntchito 15. www.cbmitalia.org

Kampeni yodziwitsa anthu "Kuchokera mu Mithunzi, Kwa Ufulu Wowona ndi Kuwonedwa,” idayambitsidwa pamwambo wa Tsiku Loyang'ana Padziko Lonse Lapansi, cholinga chake ndi kuonetsetsa chisamaliro cha maso kwa anthu pafupifupi 1 miliyoni chaka chilichonse m'mayiko a Global South, chifukwa cha ntchito zopewera, chithandizo, ndi kukonzanso anthu omwe ali ndi vuto losawona komanso kukhala nawo m'deralo.

CBM Italia ndi gawo la CBM - Christian Blind Mission, bungwe lodziwika ndi WHO chifukwa chodzipereka kwa zaka zopitilira 110 popereka chisamaliro chosavuta komanso chapamwamba cha maso. M'chaka chatha, CBM yakhazikitsa Ntchito 391 m'maiko 44 padziko lonse lapansi, zomwe zikufikira anthu 8.8 miliyoni opindula.

Zatha Anthu mabiliyoni a 2 padziko lonse lapansi ndi mavuto a masomphenya. Theka la izi, zatha Anthu mabiliyoni a 1, makamaka m’mayiko amene akutukuka kumene, kumene alibe mwayi wopeza chithandizo cha maso. Komabe 90% ya zofooka zonse zowoneka ndizotheka kupewa komanso kuchiritsidwa. (gwero: World Report on Vision, WHO 2019).

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