Kuika ziwalo kumapulumutsa mapasa omwe ali ndi matenda osowa
Kuyika komwe kuli kodabwitsa komanso kumatsegula njira zatsopano zofufuzira komanso odwala omwe ali ndi matenda osowa
Amapasa awiri azaka 16 anyamata apatsidwa mwayi watsopano wa moyo chifukwa cha kuwolowa manja kwa banja lopereka chithandizo komanso ukatswiri wa zamankhwala a Chipatala cha Bambino Gesù ku Rome. Onse anali kudwala methylmalonic acid, matenda osowa kagayidwe kachakudya omwe amakhudza anthu awiri okha mwa anthu 2 aliwonse. Mu chochitika chodabwitsa, iwo anakumana chiwindi kawiri ndi kuika impso tsiku lomwelo, kubweretsa mutu watsopano wodzaza ndi chiyembekezo.
Kodi methylmalonic acidemia ndi chiyani?
Methylmalonic acid ndi matenda osowa omwe amakhudza, monga tafotokozera, anthu a 2 mwa 100,000. Zimachitika pamene thupi limaunjikana kwambiri methylmalonic acid. Asidiyu ndi poizoni m'thupi, amawononga ziwalo monga ubongo, impso, maso, ndi kapamba. Ana omwe ali ndi matendawa amatha kukhala ndi mavuto kuyambira pamene anabadwa. Izi ndi monga kusokonezeka kwa ubongo, kuvutika kuphunzira, kukula pang’onopang’ono, ndi kuwonongeka kwa impso.
Vuto Linakumana nalo, Chiyembekezo Chatsopano
Kuchuluka kwa methylmalonic acid anali atawopseza ziwalo zofunika kwambiri za mapasa chibadwireni. Kumwa mowa mwauchidakwa, kusokonekera kwa minyewa, ndi kulephera kwa impso zinali mbali ya machitidwe awo. Komabe, chifukwa cha kupita patsogolo kwachipatala ndi kupezeka kwa zoika ziwalo zina, iwo tsopano ali ndi kawonedwe katsopano kotheratu ndi kolimbikitsa.
Moyo Watsopano, Wopanda Malire
Kuika ziwalo kwasintha moyo wa mapasawo, kuwalola kukhala ndi moyo wofanana kwambiri ndi wa anzawo. Poyamba amaletsedwa kudya zakudya zolimbitsa thupi, tsopano akhoza kusangalala ndi ufulu wochuluka ndi kudziyimira pawokha, kukhala ndi moyo "wachibadwa" popanda kudandaula nthawi zonse za kusamalira matenda awo.
Mgwirizano ndi Chiyembekezo cha Tsogolo
Tikamanena za kupereka ziwalo, nkhani ya mapasa awiriwa imatikumbutsa za mphamvu ya kuwolowa manja ndi chiyembekezo. Mayi wa anyamatawo, yemwe ndi mboni ya ulendo wawo, akupempha mabanja ena kuti aone kuikidwa m’thupi monga mwaŵi wa kusintha kwabwino kwa okondedwa awo. Kupyolera mu chikondi ndi mgwirizano, moyo ukhoza kusinthidwa. Nkhani yawo yolimbikitsa komanso yolimbikitsa ikuwonetsa kuti zovuta zimatha kugonjetsedwera mwachifundo.
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