Iyo Inovandudza Kutarisira Nzira yeCardiomyopathy
Maitiro Ekuvandudza Kuvandudza Cardiomyopathy Care
In Itari, cardiomyopathies kukanganisa pamusoro 350,000 vanhu, zvichiunza dambudziko rakakura kuhurongwa hwehutano hwenyika. Wokutanga Chirevo cheItaly pamusoro peCardiomyopathies inoratidza shanduko, ichikurudzira zvinangwa zvechimbi chekuchinja marapirwo nekuchengetwa kwevarwere vakabatwa nezvirwere izvi zvakaomarara zvetsandanyama yemoyo.
Chii chinonzi Cardiomyopathy?
Cardiomyopathy zvinosanganisira tsandanyama yemwoyo zvakananga, zvichikanganisa kukwanisa kwayo kupomba ropa zvinobudirira. Inoiswa mumhando dzakasiyana-siyana, kusanganisira dilated, hypertrophic, arrhythmogenic, uye inorambidza, imwe neimwe iine maitiro chaiwo anogona kutungamirira kukukura kusina kujairika, kukora, kana kurasikirwa kwekusimba kwemhasuru yemwoyo. Aya mamiriro anogona kukonzera matambudziko akakomba akadai sekutadza kwemoyo, arrhythmias, uye kufa kamwe kamwe, kunyanya pakati pevadiki.
Kuongororwa Kwekutanga uye Kuongororwa Kwemhuri: Nhanho Yekutanga Kuenda Kuporeswa
Cardiomyopathies, zvirwere zvenhaka izvo zvinokanganisa kushanda kwemwoyo, zvinoda kunyatsotariswa kwekutanga kuongororwa uye kuongororwa kwemhuri. Kuziva chirwere ichi padanho rekutanga kwakakosha kudzivirira matambudziko akakomba, akadai sekutadza kwemoyo, chinova chimwe chezvikonzero zvinotungamira zvekuiswa muchipatara muItari. Iyi nzira haina chinangwa chekuchengetedza hutano hwevarwere chete asiwo kuderedza zvakanyanya mari yehurongwa hwezvehutano hwenyika, parizvino inofungidzirwa kupfuura 650 miriyoni euros pagore.
Towards Integrated Patient Management
Mushumo unosimbisa kudiwa kwe kubatanidzwa kwehutano hwevarwere, zvinosanganisira nyanzvi kubva muzvidzidzo zvakasiyana. Chinangwa ndechekugadzira nzira yekuchengeta yakatsetseka uye inoshanda iyo inogona kuona kuti varwere vane kukurumidza uye kurongeka kwekuwana rubatsiro rwavanoda. Izvi zvinoda kudyidzana kwepedyo pakati pevanorapisa cardiologists, geneticists, vekutanga varapi, uye dzimwe nyanzvi dzinobatanidzwa mukuchengeta cardiomyopathies.
Kurerutsa Nzira dzeKuchengetedza
Imwe pfungwa yakakosha ndeyekurerutsa uye kurerutsa nzira dzekuchengeta. Kuderedza kuomarara kwe bureaucratic uye maitiro ekiriniki anogona kureva nguva pfupi dzekumirira varwere uye kuwana kwakananga kumishonga inodiwa. Ichi chinangwa chinopindirana nechishuwo chekuvandudza ruzivo rwemurwere uye kugadzirisa kushandiswa kwehutano hwehutano.
Ruzivo uye Dzidzo: Mbiru dzeKurwisa Kurwisa Cardiomyopathies
Kukurudzira ruzivo rwakajeka uye rwunosvikika kune varwere, pamwe chete nekuenderera mberi kudzidziswa kwevashandi vehutano, chinhu chakakosha chechirongwa chakatsanangurwa mumushumo. Kudzidzisa varwere nezvehutano hwavo uye nzira dzakanakisisa dzekugadzirisa zvirwere zvezuva nezuva zvakakosha pakuvandudza mararamiro avo. Panguva imwecheteyo, kuve nechokwadi chekuti vanachiremba uye nyanzvi dzinogara dzichienderana nezvezvichangobva kuitika zvekurapa uye zvekuongorora zvinogona kuita mutsauko mukubudirira kwekurapa.
Kuenda kuNational Network yeCardiomyopathies
Iyo yekutanga, chikamu che "Cardiomyopathies inokosha” chirongwa chinosimudzirwa ne Bristol Myers squibb, ine chinangwa chekusimudzira ruzivo pakati pevanhu uye vanoita mitemo pamusoro pekukosha kwehutano hwakarongeka uye hutsva mukurwisana necardiomyopathies. Kugadzira National Network yeCardiomyopathies inogona kumiririra danho rinotevera rinokosha pakuvandudza hutano hwehutano uye hupenyu hwevarwere vanobatwa nemamiriro ezvinhu aya, kuve nechokwadi chekuwana kwavo kurapwa kwakanakisisa kunowanikwa.
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