Indlela Yokunakekelwa Okusha Ye-Cardiomyopathy
Amasu Amasha Okuthuthukisa Ukunakekelwa Kwenhliziyo
In Italy, i-cardiomyopathies kuthinte phezu 350,000 abantu, okubekela inselele enkulu ohlelweni lokunakekelwa kwezempilo lukazwelonke. Okokuqala Umbiko wase-Italy nge-Cardiomyopathies iphawula inguquko, iphakamisa imigomo yokuvelela yokuguqula ukwelashwa nokunakekelwa kweziguli ezithintwe yilezi zifo eziyinkimbinkimbi zemisipha yenhliziyo.
Iyini i-Cardiomyopathy?
I-Cardiomyopathy kuhilela imisipha yenhliziyo ngqo, okuthinta ikhono layo lokumpompa igazi ngokuphumelelayo. Ihlukaniswa ngezinhlobo ezahlukene, okuhlanganisa ukunwebeka, i-hypertrophic, i-arrhythmogenic, kanye nemingcele, ngayinye enezici ezithile ezingaholela ekukhuleni okungavamile, ukuqina, noma ukulahlekelwa ukunwebeka kwemisipha yenhliziyo. Lezi zimo zingaholela ezinkingeni ezinzima ezifana nokuhluleka kwenhliziyo, i-arrhythmia, nokufa kungazelelwe, ikakhulukazi phakathi kwentsha.
Ukuxilongwa Kwangaphambi Kokuhlonza Nokuhlolwa Komndeni: Isinyathelo Sokuqala Esibheke Ekwelapheni
Ama-Cardiomyopathies, izifo zofuzo eziphazamisa ukusebenza kwenhliziyo, zidinga ukunakwa okukhethekile ekuxilongweni kusenesikhathi kanye nokuhlolwa komndeni. Ukuhlonza lesi sifo ekuqaleni kwaso kubalulekile ekuvimbeleni izinkinga ezinkulu, njengokuhluleka kwenhliziyo, okungenye yezimbangela eziphambili zokulaliswa esibhedlela e-Italy. Le ndlela ayihlosile kuphela ukuvikela impilo yeziguli kodwa futhi nokunciphisa kakhulu izindleko zohlelo lukazwelonke lokunakekelwa kwezempilo, okwamanje olulinganiselwa ngaphezu kwama-euro ayizigidi ezingu-650 ngonyaka.
Ubheke Ukuphathwa Kwesiguli Okudidiyelwe
Umbiko ugcizelela isidingo ukuphathwa kwesiguli okudidiyelwe, okubandakanya ochwepheshe bemikhakha eyahlukene. Umgomo uwukwenza indlela yokunakekela ebushelelezi nephumelelayo engaqinisekisa ukuthi iziguli zinokufinyelela okusheshayo nokuhlelekile ekunakekelweni ezikudingayo. Lokhu kudinga ukubambisana okuseduze phakathi kodokotela benhliziyo, izazi zezakhi zofuzo, odokotela abanakekela okuyinhloko, nabanye ochwepheshe abahilelekile ekunakekeleni i-cardiomyopathies.
Ukwenziwa Lula Kwezindlela Zokunakekela
Elinye iphuzu elibalulekile ukwenza lula kanye nokwenza lula izindlela zokunakekela. Ukunciphisa inkimbinkimbi ye-bureaucratic kanye izinqubo zomtholampilo zingasho izikhathi ezimfushane zokulinda ezigulini kanye nokufinyelela okuqondile okwengeziwe ekwelapheni okudingekayo. Lo mgomo uhambisana nesifiso sokuthuthukisa ukuzizwisa kwesiguli kanye nokuthuthukisa ukusetshenziswa kwezinsiza zokunakekelwa kwezempilo.
Ulwazi Nemfundo: Izinsika Zokulwa Nenhliziyo Yenhliziyo
Ukugqugquzela ulwazi olucacile nolufinyeleleka ezigulini, kanye nokuqeqeshwa okuqhubekayo kochwepheshe bezokunakekelwa kwempilo, kuyisici esibalulekile sesu elivezwe embikweni. Ukufundisa iziguli ngesimo sazo kanye nezinqubo ezingcono kakhulu zokulawula izifo zansuku zonke zibalulekile ekuthuthukiseni izinga lempilo yabo. Ngesikhathi esifanayo, ukuqinisekisa ukuthi odokotela nochwepheshe bahlala benolwazi lwakamuva mayelana nentuthuko yakamuva yokwelapha nokuxilonga kungenza umehluko empumelelweni yokwelashwa.
Ibheke kuNational Network of Cardiomyopathies
Isinyathelo, ingxenye “I-cardiomyopathies ibalulekile” iphrojekthi ekhuthazwe ngu I-Bristol Myers squibb, ihlose ukuqwashisa umphakathi kanye nabakhi benqubomgomo mayelana nokubaluleka kwendlela ehlelekile nentsha ekulweni ne-cardiomyopathies. Ukusungula Inethiwekhi Kazwelonke Ye-Cardiomyopathies kungamelela isinyathelo esilandelayo esibalulekile sokuthuthukisa ikhwalithi yokunakekelwa kanye nempilo yeziguli ezithintwe yilezi zimo, kuqinisekiswe ukufinyelela kwazo ekwelapheni okungcono kakhulu okutholakalayo.
Imithombo